I attended the RSDSA conference in LaJolla yesterday. The theme of the conference was, “Treating the Whole Person: Optimizing Wellness.” I love the philosophy behind treating the whole person and optimizing wellness, because that is how each person will regain their life. That’s how I did it!
It was a great experience to meet other people that had been diagnosed with CRPS/RSD and their caretakers. I’ll be honest this was the first RSDSA conference that I had been to. I look forward to going to more in the future and hopefully being a speaker too.
One common thread that I heard throughout the day was different ways for CRPS patients to cope with their pain, to put small goals in place that they can achieve, to stay grounded, to look to the positive, etc. I love all of these suggestions. I know they help and are key in helping to get through those tough days when pain levels are high.
Yet from a couple of the doctors that spoke I heard comments that I didn’t agree with: “Providing mere relief…”, “Results are good…” and “Healthier with their CRPS”. As someone that was diagnosed with CRPS (type 2), lived with it for 6+ years, tried all Traditional treatment options, was treated globally, and finally gained remission in 2013 – I think I can say that from a patient prospective the above comments were not music to my ears. Yes, it is important to be as healthy as possible but it is just as important to have some type of tangible results for the patient in regards to dramatically decreasing pain levels on a long-term basis.
I heard heartwarming stories about young ladies that pushed through their pain to regain some normalcy in their life, but they are still dealing with the CRPS demons. Whether it was a new injury that caused the CRPS to return or perhaps it people have learned to push through their pain; either way there has to be a better way.
There is a huge push for Ketamine Infusion therapy right now for CRPS and other conditions. I know it can bring short-term relief to CRPS patients and then follow-up Ketamine boosts are needed to stay pain free. Is this the right treatment option for you?
I listened to a Naturopathic Doctor talk about the need to change the paradigm and balance the body. I completely agree with these statements. What I didn’t agree with was being “healthier with CRPS”. I don’t know about you but I can be the healthiest person on this planet but if I am still in pain then I am not too happy. I’ve actually treated athletes that were diagnosed with CRPS. Their concern was centered around their pain.
What we have to look at is CRPS and most chronic pain conditions including chronic migraines are also tied into the Limbic System in the brain. Dr. Sajben talked about the glia and how important they are in the pain process. We have to take into consideration the ‘mind-body’ connection if we want to break the pain loop, help CRPS and chronic pain patients to get out of fight/flight, to balance the ANS, and address many other issues associated with chronic pain. These connections have to be made. Then we have to treat the whole person. This is not just the chronic pain. It is everything tied in with it: stress, anxiety, insomnia, depression, and/or PTSD. Once an individual is able to regain normalcy in these areas then they will regain their life. Yes, it is possible.
I personally don’t believe that any person diagnosed with chronic pain has to give in to their pain or live with extremely high pain levels. With HCT (Hypnosis Combined Therapy) we have found that chronic pain patients, CRPS, and other diagnosis have been able to dramatically decrease pain levels and many gain remission. This is an evidence based, non-invasive, drug-free protocol that is providing long-term relief. HCT: clinical hypnosis, biofeedback, light/sound therapy, neuroplasticity training, working with the Limbic System, cell memory and more… is allowing people to regain their lives when they thought they had exhausted all their options.
It is important for every pain patient on a global basis to find the treatment protocol that is right for them. We are all individuals and as such what works for one may not work for all. Please do your research, ask questions and be your own advocate.